| Tip | |||||||
|---|---|---|---|---|---|---|---|
| Type | Name | Description | Service Provider | Cost | Notes | ||
| General Info | amoxicillin-clavulanic acid, (7:1) | Sturgeon Emergency Room | $0.00 | ||||
| General Info | ciprofloxacin | Sturgeon Emergency Room | $0.00 | ||||
| General Info | Febrile Neutropenia | Neutropenia (say \"noo-truh-PEE-nee-uh\") means that your blood has too few neutrophils. These are white blood cells that help protect the body from infection. They do this by killing bacteria. | $0.00 | ||||
| Activity | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Type | Name | Description | Service Provider | Cost | Kms | To Date | Total | Notes | ||
| Other | Day at the Sturgeon | Spent 12 hours at the Sturgeon for various tests, and, ultimately, antibiotics | Sturgeon Emergency Room | $0.00 | 0 | You were seen by Robert Allan Daloise, MD Palpitations / Irregular Heart Beat Febrile neutropenia The lungs are clear. No pleural effusion or pneumothorax. Heart size is normal. No vascular redistribution or peripheral septal lines. No acute bone abnormality in the chest. No free subdiaphragmatic air. | ||||
| Blog Entries | ||
|---|---|---|
| Facebook Post:\n Got my CT Scan results yesterday. No mets found in my guts. No mets found (previously) in my bones. So, no Stage 4 diagnosis for me. What a huge relief to not be \"riddled\" with tumors. Facebook Post\n TRIGGER WARNING: anger, fear and sadness on this post. Feel free to skip over it if you want. \n\n Last Friday I posted about being emotional about going in to be deliberately poisoned. Well, let me tell you, it’s every bit as good as I expected, and I expect it to get worse with each infusion. \n\n As you know I love to travel and adventure and hike and bike and just get out and do stuff. I’ve worked pretty mindfully at maintaining my fitness level so I can keep it up as long as possible. \n\n I am not genetically gifted like Legendary Ed, and the last few years I can feel very noticeably that my strength and fitness have been declining. I could feel my window of opportunity closing very quickly and I knew I’d have to get on doing the things I want to do before I can’t anymore. I’ve had some conversations in my head about adjusting my expectations down about how many more big things I’ll be able to do. For example, I decided that, instead of trying for 10+ more European cycle tours (yes, we see lots of 70-somethings and 80-somethings touring, so it wasn't an unrealistic expectation... back then), I would strive to do one or two, which is more realistic given my fitness decline and heat sensitivity. \n\n Then came the cancer diagnosis. They have to poison me bad enough to kill the cancer while trying not to kill me in the process. I believe that they will be able to do this but I do not, in any way, trust that they can do it without stripping me of the last of my physical strength and fitness for doing the things that I most love. Potential long-term effects of my chemo include bone loss and breaks, heart problems, lung problems, neuropathy, cognitive decline, diabetes (I’m already inching my way to that one)… it’s a daunting list, and I’m just the delicate flower to get some, or even all, of them. \n\n By the time I’ve recovered from chemo, I’ll be almost 60, and no, I won’t be able to rebuild my pre-chemo fitness so please don’t try to ‘cheerlead’ me into thinking I will. 60-year-old bodies don't work that way - at least not MY 60-year-old body. In 2023 I was already at my limit for doing the cycle touring (etc) and I’m grieving because I don’t believe that I’ll be able to do it again. Not without scaling back the cancer treatment - trading the risk of earlier death for the opportunity to do one (or two) more big trip. My body can’t go through this for a year and then just spring back. \n\n I’ll talk with my oncology team about this. Since they have found no mets in my bones or guts, maybe it's viable to scale back my treatment so I can still do one or two big spectacular things. I want to explore every option I may have for coming out of this with some of my strength and fitness intact. \n\n I know this is a very privileged post. I know that I should be grateful for what I have had and what I will have. But I’m just so angry and frustrated and sad to have my remaining strong years taken away from me. It overwhelms me sometimes. Now is one of those times. \n\n Hugs and support are very welcome. Toxic positivity is not - please be gentle.
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